Family Stories - Beyond Batten Disease Foundation

What is Mad Cow disease?

Rare your Blue for Dup15q!!!

We are so grateful for every member of our rare herd 🦓 Today, we honor our patients, families, and partners whose tireless advocacy brings visibility and hope to rare disease communities. As we head into February, a month dedicated to elevating rare disease awareness and accelerating progress, today marks a meaningful segue into Rare Disease Day and the collective action ahead. #InternationalZebraDay #RareDiseaseAwareness #RDD2026 | Orsini - Rare Disease Pharmacy Solutions